This page from ASPIRE is a collection of patient stories from families and individuals discussing their experience with PANS. The collection contains over 70 diverse stories, as well as information on how to share your own. Click the button below to learn more and access the collection.
Author Archives: ecolley
A Family’s Long Journey With PANDAS: Fighting for Recognition and Support
This article from the PANDAS Network describes one families experience seeking support and recognition of their child’s condition. Click the link below to read their story
Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)
Pediatric Acute-Onset Neuropsychiatric Syndrome (known as PANS for short), is a condition that appears suddenly after an infection and can include symptoms of OCD, anxiety, eating restrictions and many more. Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (known as PANDAS for short) is a related condition to PANS. This article written and published by …
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Band 13th Floor’s Journey on Employment and Adulting – AutismBC
This article details the experiences of the band 13th Floor and their experience with transitioning to adulthood and employment. Click the link below to read their article for AutismBC
Transition into Post-Secondary with Evan Noble – AutismBC
Evan Noble, an Autistic teen, details his experience with ASD diagnosis and the transition to post secondary school in this article for AutismBC. Click on the link below to read Evan’s story
Parenting Neurodiverse Kids To Their Needs – Suzie Glassman
Written for Understood website (a “nonprofit empowering the 70 million people with learning and thinking differences in the United States”). This article by Suzie Glassman, a parent of neurodivergent kids: Click on the link below to read Suzie’s story and visit the site.
Parents Raising Neurodivergent Kids – Emily W. King
In this article, Emily shares her experience as a parent of a neurodivergent child and details her experiences listed below. Click the link below to read the article.
Supporting Gender Diversity as a Parent – Rebecca Rent
This lived experience article written by Rebecca Rent describes her experience supporting her neurodivergent child’s gender diversity journey. In the article she details: Click the link below to read the article:
Growing Up Undiagnosed – Jes
Jes shares their story in a blog post about: Click the link below to read their story:
Growing up with Undiagnosed Autism – Authentically Emily
This blog post’s author writes about her experience growing up undiagnosed and how it prevented her from getting support for the first 17 years of her life where she: Click the link below to read Emily’s story.